Question explored with the scientific record
Conversation so far
- 1 A large portion of Long COVID looks exactly like ME/CFS.When Long COVID includes: Persistent profound fatigue Clear post-exertional malaise (crashes after activity) Unrefreshing sleep Cognitive problems (“brain fog”) Often orthostatic intolerance …it meets the diagnostic criteria for ME/CFS. Many researchers and clinicians now treat this subgroup of Long COVID as post-infectious ME/CFS triggered by SARS-CoV-2.The core features, the fluctuating nature, the lack of a cure, and the management approach (pacing to avoid PEM) are the same. COVID simply produced a large new cohort of people with this pattern of illness. So it is a lifetime illnes with no cure. I thought covid was not + a private exchange
- 2 is long covid a lfetime illness or can one return to a previous activity level after a time period + a private exchange
- 3 just talk long covid. what are the chances of returning to nore mal. + a private exchange
- 4 forget ME?CFS juts talk covid + a private exchange
- 5 what about not hospitalized and full functioning yet sick + a private exchange
- 6 What percentage of non-hospitalized people are still symptomatic at 12+ months? + a private exchange
- 7 thre is NO info on people with long covid after a year? Really?
Answered on this page ↓
thre is NO info on people with long covid after a year? Really?
The short version: yes, there is real data, and I was wrong to leave the impression there isn't. There is just no single clean percentage for your exact group.
The 125-person non-hospitalized cohort did look past 12 months, and it did find elevated depression, cognitive deficit, tics, and worse quality of life compared with 347 controls [1]. What it never reported was the share of survivors still sick, because it split people by time since infection instead of following the same person forward [1]. That is a design limit, not a missing study.
Other records do give persistence numbers, just in different populations. A Western Australian cohort found 58.7% of adults still symptomatic at 6 months, and among those still sick the symptom count barely moved between 3 and 6 months [5]. A Korean cohort reported 71.2% with long COVID symptoms at 24 months [3]. A German matched cohort found about 40% higher post-COVID diagnosis rates at 3 months, with some diagnoses persisting to 12 months [4].
| Group | Timepoint | Still symptomatic |
|---|---|---|
| Non-hospitalized adults | >12 months | elevated vs controls, no % given [1] |
| Western Australia adults | 6 months | 58.7% [5] |
| Korean adults | 24 months | 71.2% [3] |
| Children, Iraq | 24 weeks | 15.2% [2] |
My call: the data exists, it is just scattered across cohorts that measure different things, and the honest answer to "is there info after a year" is yes, with the caveat that the cleanest non-hospitalized cohort reports comparison, not prevalence. Confidence: moderate.
Sources used 5
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New symptoms and prevalence of postacute COVID-19 syndrome among nonhospitalized COVID-19 survivors
In nonhospitalized COVID-19 survivors, PTSD, anxiety, depression, cognitive deficit, and tics were more prevalent than in controls, with some symptoms peaking at 6-12 months; vaccination was associated with lower cognitive deficit and quality-of-life impairment.
DOI: 10.1038/s41598-022-21289-y -
The clinical course and outcomes of SARS-CoV-2 virus infection in children: a 24-week follow-up study in Sulaimaniyah, Iraq
In a prospective cohort of 105 children with RT-PCR-confirmed COVID-19 in Sulaimaniyah, most recovered within 4 weeks, 15.2% had long COVID symptoms at ≥24 weeks, and older age, comorbidity, and ongoing symptoms at 4-6 weeks were associated with persistent symptoms.
DOI: 10.1186/s12887-023-04111-0 -
Long COVID prevalence and impact on quality of life 2 years after acute COVID-19
In a Korean adult cohort, long COVID symptoms persisted up to 24 months with neuropsychiatric effects remaining prominent, and post-infection vaccination did not significantly reduce long COVID prevalence despite high vaccination uptake.
DOI: 10.1038/s41598-023-36995-4 -
Incidence and persistence of post-COVID condition in children – a matched cohort study in Germany
This German matched-cohort study using routine health insurance data shows that children and adolescents with SARS-CoV-2 infection have a higher incidence of post-COVID conditions within 3 months, with persistence varying by age and diagnosis, indicating a measurable PCC burden …
DOI: 10.1093/eurpub/ckad160.095 -
Factors associated with persistence or recovery from long COVID 6 months post-SARS-CoV-2 infection
In a prospective cohort of 1,234 adults with long COVID 3 months post-Omicron infection in Western Australia, 58.7% had persistent symptoms at 6 months; pre-existing health conditions, 6+ symptoms at 3 months, and fatigue/dyspnoea/cough predicted persistence, while age, sex, and…
DOI: 10.1017/s0950268825100551